Tag Archives: Denial

An Open Letter to Autism

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An Open Letter to Autism

Dear autism,

It’s been a year today since you let your presence known and changed our lives forever. I won’t lie, getting the verdict was a tremendous shock and it didn’t get easier when we realized, soon after, that not only did JA have autism but also his younger brother, V. For days we were in complete denial and disbelief. For weeks we were devastated, grieving the loss of our sons’ future we had imagined. We didn’t give you the warmest welcome – rather the opposite. We were angry with you for choosing our boys as targets. We hated your presence and for a long time, we had nothing but negative feelings towards you. I think it’s safe to say that we were not prepared for your appearance but I guess it has something to do with your bad reputation. Fortunately, we’ve come to learn that your reputation is grossly exaggerated.

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The Verdict: Your Son Is Autistic

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The Verdict: Your Son Is Autistic

We sat there glued to the hospital chairs, staring at the two grave faces looking back at us, not really believing our own ears. “I’m afraid your son is autistic.” I remember the extreme rush of thoughts going through my head at that moment. It was like my brain was working overtime, jumping between colorful images of my dear little boy with his bright blue eyes and vague depressing images of him in the future, sitting somewhere all alone and staring at nothing at all. To me, these drastically contrasting images didn’t make sense. While a part of me knew the truth of what was being said deep down inside, another larger part was screaming with protest. It couldn’t be! Not my happy little boy who was always smiling and giving me his special little hugs while declaring his love for me. I heard my voice slowly asking with a mix of doubt and hope: “Are you sure?” With all the certainty in the world, one pair of grave eyes looked directly at me, followed by a single word: “Yes”.
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Autism: What Does It Mean?

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Autism: What Does It Mean?

Before I really start countering our journey, I feel like I need to clarify a few things about autism. The reason is simple; so many people make wrong assumptions when they hear the word autism – and frankly, I was one of them before my elder son got diagnosed.

When I first heard the doctors say that our son had autism, I refused to believe it. It simply couldn’t be right. No no. I was sure the doctors were wrong. My little J.A. was always smiling, loved being around other people, was very social and these were obviously traits that did not fit with autism. Obviously! I mean, his speech wasn’t that much behind his age mates – he was, after all, born prematurely! It was completely natural. Yes, the doctors had gotten it wrong – it was just a misunderstanding. They did not know my son. I did!
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