Tag Archives: Diagnosis

An Open Letter to Autism

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An Open Letter to Autism

Dear autism,

It’s been a year today since you let your presence known and changed our lives forever. I won’t lie, getting the verdict was a tremendous shock and it didn’t get easier when we realized, soon after, that not only did JA have autism but also his younger brother, V. For days we were in complete denial and disbelief. For weeks we were devastated, grieving the loss of our sons’ future we had imagined. We didn’t give you the warmest welcome – rather the opposite. We were angry with you for choosing our boys as targets. We hated your presence and for a long time, we had nothing but negative feelings towards you. I think it’s safe to say that we were not prepared for your appearance but I guess it has something to do with your bad reputation. Fortunately, we’ve come to learn that your reputation is grossly exaggerated.

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Family and Autism Live!

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Family and Autism Live!

Last week I reported that this blog now has well over 1000 followers (and in fact it’s now well over 1100!), something I am still very much amazed about. And what a coincidence that in the same week, I was contacted by Autism Live, a network focusing on everything autism related, that broadcasts online on weekdays from 9am to 12pm Pacific time, for an interview. Apparently, they had stumbled upon my blog and found it interesting enough to contact me and ask if I was willing to be interviewed live via Skype. And I agreed.

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Hopeful

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Hopeful

For the first time in a long time, I actually feel hopeful. And here is why…

Last week, our suspicion that V has autism, was confirmed. During that meeting, we reminded them that we were planning on moving to Iceland in a few months. They became a bit puzzled as if they had forgotten about that fact and one of them suggested that maybe the big coordination meeting, that was supposed to be held in about three weeks, should be canceled instead of wasting so many resources for such a short period of time. Fortunately, we had been prepared for the news of V being autistic because if we would have been in shock I am not sure we would have responded the way we did. Instead of numbly giving in and agreeing to the suggestion, both of us strongly objected the idea. We were not ready to wait a moment longer for our son to get sufficient help!

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V’s Autism Confirmed

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V’s Autism Confirmed

It was obvious she was uncomfortable where she sat fidgeting in her chair between the other two specialists. She had been speaking around it for minutes, slowly approaching the topic like a predator circles its prey and I knew by the way she now hesitated that it was time for the verdict. I embraced myself for what was about to be said and did not have to wait for long. “We all agree that V is autistic” she said solemnly followed by a silence. My husband and I gave each other a knowing look and then he said with a sad smile: “Well, we kind of knew that already”. And it was true, we had known ever since our older son got diagnosed almost 7 months ago.

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Yesterday’s Autism Highlights

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Yesterday’s Autism Highlights

After yesterday, most of my friends probably know that April 2 is World Autism Awareness Day as I was practically spamming my Facebook wall with likes and shares of all sorts of autism related material! I realize that it may have been a bit much but I have a pretty darn good reason – the elder of my two sons was diagnosed with autism last September and the younger one is very likely to be diagnosed with autism too in only a matter of days. Therefore, yesterday was pretty special to me and my family as it was the first time we celebrated the day.

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The Early Signs of Autism

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The Early Signs of Autism

Recent statistics from the US show that 1 in every 110 children have autism. That is not a small number! Further, statistic over the past few years show that the number of cases are increasing – the odds are not getting any better. Thus it is important that people know the signs of autism in order to detect autism as soon as possible.

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Can You Prepare for an Autism Diagnosis?

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Can You Prepare for an Autism Diagnosis?

“V” she said for the 7th time, a little louder than before to try and get his attention. It wasn’t really working, he was very occupied with all the toys in the room and simply didn’t hear her. The physician looked at me and asked: “Is this normal form him? Is it common that he does not respond to his name?”. The sinking feeling became more profound and I nodded. Still, I felt like I had to give him something so I added: “But this is extra bad, it usually not this hard to get his attention. I guess it’s all the new toy that is distracting him”. Despite my excuses the sinking feeling no longer threatened to take over but comfortably settled into the armchair of my mind. The tiny sense of hope vanished and reality checked in again. I knew deep down inside that the outcome of this evaluation was not going to be good.

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Moving Back to Iceland

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Moving Back to Iceland

For those of you who do not know, we currently live in Denmark where my husband and I are working on our graduate degrees. We moved here in the summer of 2010 and our original plan was to live here for a few years and not only finish our degrees but also gain some work experience in a foreign country. However, when the news of our son’s autism diagnosis struck, everything changed and suddenly our future plans were up in the air.

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How Open Should We Be about Autism?

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How Open Should We Be about Autism?

After our older son got the autism diagnosis it pretty soon came to the point where we discussed whether and to what extent we should tell people about his condition. The very first concern that we had was that telling people about him being autistic would automatically put a label on him with unknown consequences. First and foremost, we were concerned with how it would affect our son but naturally, we discussed it also from our perspective as parents. We took to the internet where we read about how other parents of autistic children were addressing this fundamental question about how openly the child’s autism disorder should be discussed and found that it varies substantially between people. As a result, I have summarized a few plausible affects, both positive and negative, of opening up and telling people about the autism diagnosis.

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Men and Women React Differently to Trauma

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Men and Women React Differently to Trauma

Before I go into details in this post I feel it is important to emphasize that I am no expert on the matters of autism but merely a mother whose son has been diagnosed and is likely to get a diagnosis for the other one too. Hence, my writings are but accounts of that experience and how it affects the family. One important aspect of that is how all this affected my husband and I in different ways.

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